Connecting the dots between Sleep Disordered Breathing issues AND heart and lung health for people with Post-Polio Syndrome, Amyotrophic Lateral Sclerosis, Muscular Dystrophy, as well as the public at-large.
More and more attention is being focused on the long-term consequences of Sleep Disordered Breathing (SDB). Daytime indicators of a potential nighttime problem, such as: excessive daytime sleepiness, low energy level and lack of clarity of thought, are often early signals of a serious sleep related issue. Recent research findings suggest that Sleep Disordered Breathing is likely to be a risk factor for pulmonary hypertension and consequent cardiac involvement.
The Breathing & Sleep Symposium is a free symposium hosted by the Salk Institute for Biological Studies. Defining neuromuscular breathing basics and empowering people with PPS, ALS, and muscular dystrophy to better participate in their own care.
The challenge of understanding how to correctly test and treat patients experiencing neuromuscular respiratory compromise falls mainly on pulmonary doctors, neurologists and respiratory therapists. However, equal responsibility lies with patients to learn all they can to contribute to their own wellness. Putting tools in the hands of patients is a crucial first step in this learning/teaching process.