Vesna Aleksovska

The association of citizens with rare diseases, "Life with Challenges" was founded on 2009. The founders are patients and parents with children with the rare disease - Gaucher. All together, with our families and close friends, we embraced a lot of challenges in our lives.  We decided that we deserve to be healthy and able to contribute to our society. We decided that we should not live on the margins of our society and that we want to have life with better quality. 
Our efforts are to secure happier life with higher quality for the patients with rare diseases, focusing on Gaucher, because there are around 5 patients with other rare diseases and 10 with Gaucher. We really hope that R. Macedonia will become a part of the European Community of happy patients.