Asociación Española de Ictiosis
17
  • LAZOS PARA LA ICTIOSIS

    258 views 5 months ago
    Como ya sabéis, el mes de mayo es el mes de concienciación mundial de la Ictiosis. Durante este mes, las asociaciones de Ictiosis de todo el mundo se esmeran para concienciar a su entorno de los desafíos y esperanzas de la comunidad de la Ictiosis.

    este año, se nos ha ocurrido sacar a pasear el pececito que llevamos dentro, y para darle más visibilidad a nuestro mensaje y para agradecer su apoyo a todos los que compartan un ratito de sus vidas con nosotros para ponerse en nuestra piel, hemos pensado en regalarles un lacito. Un lacito verde por el color de nuestra Asociación, y que convenientemente inclinado, será un pececito que acompañará a su nuevo dueño para que nos recuerde durante este mes de concienciación. Show less
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  • Vídeos de la Fundación FIRST Play all

    Videos de la Fundación FIRST, Foundation for Ichthyosis & Related Skin Types, en los Estados Unidos dedicada a ayudar a las familias afectadas por las enfermedades genéticas de la piel genéticas conocidas colectivamente como Ictiosis
    • The Foundation for Ichthyosis Story-Part 1 - Duration: 9 minutes, 43 seconds.

      • 8 years ago
      • 247,479 views
      A video introduction to the Foundation for Ichthyosis and Related Skin Types, Inc. an organization dedicated to educate, inspire, and connect those touched by ichthyosis and related disorders. Film...
    • The FIRST Story-Part 2 - Duration: 5 minutes, 24 seconds.

      • 8 years ago
      • 5,076 views
      A video introduction to the Foundation for Ichthyosis and Related Skin Types, an organization dedicated to educate, inspire and connect those touched by ichthyosis and related disorders. Filmed at ...
    • Butterflies: The Children of Ichthyosis - Duration: 4 minutes, 24 seconds.

      • 8 years ago
      • 24,103 views
      This is the full length video created by the Foundation for Ichthyosis & Related Skin Types, Inc. in 1998. Designed specifically with children in mind, it addresses concerns and questions about he...
    • CBS Super Screen Video-Times Square - Duration: 16 seconds.

      • 6 years ago
      • 1,615 views
      FIRST has the opportunity to show a brief advertisment on the CBS Super Screen near Times Square in New York. It will show 18 times each day between December 15 and January 15. This is a great op...
    • An Introduction to Ichthyosis - Duration: 2 minutes, 1 second.

      • 6 years ago
      • 1,446 views
      This 2-minute video is an introduction to the rare skin disorder called ichthyosis (ick-thee-oh-sis) and to the Foundation for Ichthyosis & Related Skin Types, Inc. (FIRST). FIRST is the only nati...
    • FIRST - Bailey - Duration: 2 minutes, 2 seconds.

      • 4 years ago
      • 1,975 views
      Bailey talks about life with ichthyosis and the pursuit of her dreams. She loves the performing arts and doesn't believe that ichthyosis should stop anyone affected from reaching his/her full pote...
    • A lesson in basic genetics - Duration: 3 minutes, 28 seconds.

      • 5 years ago
      • 635 views
      FIRST member and former biology teacher gives a unique lesson in basic genetic mutation.
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