StiffPersonSyndrome

Stiff-person syndrome (SPS) is a rare neurological disorder with features of an autoimmune disease.  SPS is characterized by fluctuating muscle rigidity in the trunk and limbs and a heightened sensitivity to stimuli such as noise, touch, and emotional distress, which can set off muscle spasms.  Abnormal postures, often hunched over and stiffened, are characteristic of the disorder.  People with SPS can be too disabled to walk or move, or they are afraid to leave the house because street noises, such as the sound of a horn, can trigger spasms and falls.
 
Support groups include:

https://www.facebook.com/groups/169235426468563/
https://www.facebook.com/groups/SPSUK/
https://www.facebook.com/groups/stiffs/
http://spsmatters.org/
https://www.facebook.com/pages/SPS-Australia-/256476660213
http://www.causes.com/causes/123426-stiff-person-syndrome
http://www.smssupportgroup.co.uk/