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  • Porphyria Live!

    7,371 views 5 years ago
    Watch and listen to Porphyria patients share their stories and learn how they cope with the challenges of living with Porphyria.

    You'll also meet some of the world's foremost Porphyria experts as they take you inside the laboratories that are working hard toward a cure.

    Visit the link below to find out how to get your copy of this very Informative video for you and to help others understand what Porphyria is.

    http://porphyriafoundation....... Show less
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  • Patient Focused Drug Development Meeting

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  • Nicole Castellano ~ Chicago Marathon Play all

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