328
  • Porphyria Live!

    6,769 views 3 years ago
    Watch and listen to Porphyria patients share their stories and learn how they cope with the challenges of living with Porphyria.

    You'll also meet some of the world's foremost Porphyria experts as they take you inside the laboratories that are working hard toward a cure.

    Visit the link below to find out how to get your copy of this very Informative video for you and to help others understand what Porphyria is.

    http://porphyriafoundation.... Show less
    Read more
  • A Doctor suffers from AIP (Acute Intermittent Porphyria)

    This item has been hidden
  • Porphyria Pie Challenge

    • Porphyria Pie Challenge - Duration: 2 minutes, 5 seconds.

      • 2 years ago
      • 2,489 views
      Desiree Lyon Howe, Dr. Lisa Kehrberg, and Rose Jeans respond to the challenge given them for the #PorphyriaPieChallenge.
    This item has been hidden
  • Porphyria Diagnosis Stories Play all

    This item has been hidden
  • Panhematin Treatment for AIP: How to Administer

    This item has been hidden
  • Uploads Play all

    This item has been hidden
to add this to Watch Later

Add to

Loading playlists...