Alagille Syndrome Alliance

The Alagille Syndrome Alliance (ALGSA) is a 501c3 nonprofit patient advocacy organization supporting individuals and families affected by Alagille syndrome (ALGS), a rare multi-system disease affecting approximately 1 in 30,000 to 1 in 70,000 live births. We connect the ALGS community with education, support, research opportunities, and facilitate connections to one another and to physicians, scientists, and resources that can help them. While collaborating with scientists, clinicians, researchers, and industry partners, we advance understanding, improve treatments and care, and accelerate progress toward a cure. At the heart of everything we do is the patient and family voice.