IFSBH

The International Federation for Spina Bifida and Hydrocephalus (IFSBH or IF) is the worldwide umbrella organisation (INGO) for Spina Bifida and Hydrocephalus organisations. It was created in 1979 by national organisations of people with these impairments and their parents. Today IF's members consist of 55 regional and national umbrella organisations for Spina Bifida and Hydrocephalus. Furthermore, IF has intensive contact with regional and national organisations spread over five continents. IF's activities are focused on the dissemination of information and expertise throughout the world to families, individuals, professionals and volunteers involved in the field of Hydrocephalus and Spina Bifida.