3 years ago
Nora visited the American Girl store near Atlanta for her 3rd birthday. We picked out Nora's first American Girl doll and had a party. The store manager offered to open the store early so we could shop without and chance of Nora getting sick. The American Girl store made Nora's birthday something special and we are forever grateful. for more information about this, visit Goodentree.com
Nora is dying from SMA (Spinal Muscular Atrophy). SMA is the #1 genetic killer of infants and 90% of Type-1 SMA kids don't live to see their 2nd birthday, some never make it to their first. SMA is a horrible disease that weakens all the voluntary muscles of the body. Cough, sitting, standing, swallowing, hands, fingers, toes - everything skeletal is affected. Nora has almost no movement left. Her brain is not affected though she she's like any normal 3-year-old but trapped in a failing body. She is growing weaker and weaker as the disease progresses. There is no treatment for SMA and there is no cure. We just make the most of the time we have left with Nora.