The National Advisory Council for Human Genome Research (NACHGR) advises the Department of Health and Human Services (DHHS), the National Institutes of Health (NIH), and the National Human Genome Research Institute (NHGRI), on genetics, genomic research, training and programs related to the human genome initiative. NACHGR performs second-level peer review for grant applications, and determines the program priorities for NHGRI and the goals for the government's efforts in the International Human Genome Project (HGP).
NACHGR meets three times a year. The Ethical, Legal and Social Implications (ELSI) Research Advisors (ERA), a working group of NACHGR, provides advice and guidance to NHGRI on the ethical, legal and social implications of genomic research.
January 13-14, 2015 - Purpose: Citizen Science is an approach to research that involves the public directly in the research process itself as partners and collaborators. The purpose of this workshop is to identify the ELSI challenges raised by Citizen Science in the context of biomedical research and identify ways for the National Institutes of Health (NIH) to address these ELSI issues.
The term "biomedical" is used in the broadest sense to include a wide range of research related to the NIH mission: biological, biomedical, behavioral, social, environmental and clinical studies that relate to understanding health and disease.
On October 2-3, 2014, the National Human Genome Research Institute (NHGRI) sponsored its seventh Genomic Medicine meeting - Genomic Medicine Meeting VII: Genomic Clinical Decision Support. Blackford Middleton, M.D., M.P.H., M.Sc., Vanderbilt University, and Marc Williams, M.D., Geisinger Health System, co-chaired the meeting. More: http://www.genome.gov/27558904
September 30, 2014 - A closing symposium for the exhibition - Genome: Unlocking Life's Code - that explores the potential of genomics to prevent, diagnose, treat, and cure diseases in individuals, their families, and global populations. More: http://www.genome.gov/Smithsonian/
On July 28-29, 2014, the National Human Genome Research Institute (NHGRI) sponsored the workshop - Future Opportunities for Genome Sequencing and Beyond: A Planning Workshop for the National Human Genome Research Institute - at the Bethesda North Marriott Hotel & Conference Center.
The objectives of the workshop are to: 1. Discuss the scientific questions and opportunities that can be substantially addressed by large-scale genomics studies, starting with genome sequencing but also considering other genomic technologies. 2. Consider options for future NHGRI programs that would address these questions and opportunities. More: http://www.genome.gov/27558042
Genomics in Medicine Lecture Series. The series is sponsored by the National Human Genome Research Institute (NHGRI), in collaboration with Suburban Hospital and Johns Hopkins University School of Medicine. Each lecture takes place at Suburban Hospital's lower level auditorium at 8600 Old Georgetown Road in Bethesda, Md. All are welcome to the hour-long lectures, which begin at 8 a.m. on the first Friday of the month. Advanced registration is not required; however, those requesting continuing medical education (CME) credits are asked to sign in. More: http://www.genome.gov/27555276