On March 21, 2016, the National Institutes of Health (NIH) will sponsor a workshop - Future Directions for Undiagnosed Diseases Research: The UDN and Beyond to convene a group of stakeholders in and outside the current UDN organization to review thoughts on the UDN and recommendations on possible continuation. Results of the Request for Information (RFI), NOT-RM-16-001, and experience with patients, to date, will be presented. A draft recommendation about continuation will be prepared. More: https://www.genome.gov/27564304
October 1, 2015 marked the 25th anniversary of the launch of the Human Genome Project. To commemorate this anniversary in a fashion that showcases the rich history of the Human Genome Project and the field of genomics over the last quarter-century, the NHGRI History of Genomics Program is hosting a seminar series entitled "A Quarter Century after the Human Genome Project's Launch: Lessons Beyond the Base Pairs." The program will feature Human Genome Project participants, who will be sharing their perspectives about the Project and how it affected their careers.
The series kicks off on December 3 with a panel discussion that will include the key NHGRI leadership during the Human Genome Project. Other speakers will follow in early 2016. The lectures take place on Thursday afternoons from 2 to 3 p.m. in Lipsett Amphitheater in Building 10 on the main NIH campus. All seminars are free and open to the public. More: http://www.genome.gov/HGP25/
The National Advisory Council for Human Genome Research (NACHGR) advises the Department of Health and Human Services (DHHS), the National Institutes of Health (NIH), and the National Human Genome Research Institute (NHGRI), on genetics, genomic research, training and programs related to the human genome initiative. NACHGR performs second-level peer review for grant applications, and determines the program priorities for NHGRI and the goals for the government's efforts in the International Human Genome Project (HGP).
NACHGR meets three times a year. The Ethical, Legal and Social Implications (ELSI) Research Advisors (ERA), a working group of NACHGR, provides advice and guidance to NHGRI on the ethical, legal and social implications of genomic research. More information: http://www.genome.gov/Council/