Dandy-Walker Alliance

The Dandy-Walker Alliance is the only nonprofit 501(c)(3) organization in the world advocating for people afflicted by Dandy-Walker Syndrome. We are an all-inclusive organization comprised of individuals directly and indirectly affected by Dandy-Walker. We share a collective interest in educational, informational activities and supporting non-partisan research to increase public awareness of the congenital birth defect Dandy-Walker. 

The Dandy-Walker Alliance also support all efforts to determine the cause(s), find the cure and to ameliorate the effects of Dandy-Walker. We believe that by making findings available to families affected in an organized and accessible way and by disseminating the direct and indirect outcomes of translational research we can more swiftly move the results from the bench to the bedside in an expeditious manner.

To learn more and get involved, visit dandy-walker.org or email awareness@dandy-walker.org.