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Sip Ventilation
Dr. Anne Rutkowski, Cure CMD and Luke Hoban, College Student with CMD, discuss Sip Ventilation and when it might be the right time to start daytime ventilatory support.-
When is it Time to Start Daytime Breathing Support? - Duration: 23 minutes.
Dr. Anne Rutkowski talks about the need for initiating daytime breathing support through the use of Sip Ventilation -
Luke Hoban on Sip Ventilation - Duration: 6 minutes, 48 seconds.
Luke Hoban, a college student with CMD, shares his experience with Sip Ventilation.
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Created playlists
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Cure CMD's SEPN1 Playlist - Playlist
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Cure CMD's Collagen VI Playlist - Playlist
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#GivingTuesday - Playlist
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Cure CMD's LMNA Playlist - Playlist
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Sip Ventilation - Playlist
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Breathing in CMD - Playlist
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Popular uploads
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Make Your Own Walker - Duration: 10 minutes.
Learn how to make your own walker from PVC pipe and other parts available at any hardware store.
The fastener is a type of cotter pin, hitch pin is another name. Here is a picture:
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What is Congenital Myopathy? - Duration: 4 minutes, 20 seconds.
Sponsored by the Congenital Muscle Disease International Registry and Cure CMD, this video, produced by three high school summer interns explains the diagnostic process of Congenital Myopathy -
Cough Assist Demonstrated - Duration: 7 minutes, 43 seconds.
Dr. Anne Rutkowski and her daughter, Maia, demonstrates how to use a Cough Assist machine. -
G-tube Pump for Overnight Feeding - Duration: 117 seconds.
G-tube Pump for Overnight Feeding -
Strech Out! (Full Video) - Duration: 38 minutes.
Stretch Out Video Series sponsored by Children's National Medical Center in Washington D.C.
An educational resource and exercise video for children with muscular dystrophy and their parents.
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Sarah - Duration: 4 minutes, 26 seconds.
Sarah talks about having Ullrich congenital muscular dystrophy (collagen VI myopathy) from England
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Subscriptions
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Michelle Durante - Channel
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A Foundation Building Strength - Channel
A Foundation Building Strength is a non-profit organization dedicated to finding treatments for Nemaline Myopathy.- CHANNEL
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Alisha Johnson - Channel
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Sar - Channel
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Nemaline Myopathy Global Community - Channel
Nemaline myopathy (NM) is the most common of all congenital myopathies, but is still considered a rare muscle disorder. Finding good information about NM has not been easy, but we are making improvem- CHANNEL
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Stanford Neuromuscular Program - Channel
The Neuromuscular Program at Stanford and Lucile Packard Children's Hospital at Stanford (LPCH), is directed by John Day, MD, PhD. We pair cutting edge research with comprehensive, patient-centered ca- CHANNEL
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