Help share more videos like this by supporting CSF: http://csfinfo.org/donate-o... Some of the very common symptoms associated with Chiari malformation are swallowing issues and, sometimes, difficulty breathing or speaking. Otolaryngologist, Dr. Lucinda Halstead, gives a great description of how the throat works, why it doesn't work quite right in patients with Chiari, and how a multidisciplinary approach after surgery can help patients feel better.
This lecture was given at the May 10, 2018 Charleston CSF Chapter meeting held at the Medical University of South Carolina.
CSF sponsors educational lectures and ensures that these lectures are filmed and posted online in keeping with its mission to educate the medical, allied sciences and lay community about Chiari malformation, syringomyelia and related disorders.
Every year, the Chiari & Syringomyelia Foundation sponsors its annual Think Tank meeting where the experts and thought leaders discuss their research and clinical findings in the field of Chiari malformation, syringomyelia and related disorders. These meetings help to advance the field of research and benefits patients by improving the availability of clinical data that informs their treatment plans.
CSF hosts a Research Colloquium every fall to bring together experts working on Chiari malformation, syringomyelia and related disorders. These experts present their scientific and clinical research to start discussion and share these ideas. Every year, these discussions spark new research projects and help move the field forward. We come closer and closer to real answers every single year. Learn more: http://csfinfo.org/colloquium
Each year, CSF sponsors a CME-accredited, full-day symposium at Brown University where experts come to teach and learn more about disorders of cerebrospinal fluid flow. Past topics have touched on Chiari malformation, syringomyelia, hydrocephalus, cognitive implications of CSF flow disorders and more. The 2018 CSF Disorders Symposium will take place on June 16, 2018. **Important note: this, unlike most other CSF-funded educational opportunities is NOT free to attend and there is a fee to accommodate CME credits. Feel free to learn more by emailing us at firstname.lastname@example.org.
Chiari, syringomyelia, Ehlers-Danlos syndrome unite@night walks are one-mile, casual evening walks around the country that bring together people who are living with the devastating effects of these and many other related disorders. These walks help support local Chapters, medical research, national education efforts and ongoing awareness projects that benefit families in the United States and abroad who suffer every single day from these disorders. Learn more: http://csfinfo.org/csf-unite-night