ARPKDCHF

The ARPKD/CHF Alliance's mission is to educate, advocate, support and advance research specifically for Autosomal Recessive Polycystic Kidney Disease and Congenital Hepatic Fibrosis, with the vision of improving the lives of those affected.  

We are the only organization in the world solely dedicated to this disease. 

Website:  http://www.arpkdchf.org

Contact info: 1-717-529-5555 and info@arpkdchf.org 

Facebook group for hope and support: https://www.facebook.com/groups/89846751499/

Facebook page for information: https://www.facebook.com/www.arpkdchf.org/