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  • The Affects of G.I. issues, Cardiac & Sleep on Myotonic Dystrophy Presentations - Duration: 1 hour, 14 minutes.

    • 3 years ago
    • 743 views
    First Annual Myotonic Dystrophy Patient Education Meeting at Stanford School of Medicine. G. I. presentation by Linda Nguyen, MD, Director of Stanford's Neurogatroenterology & Motility Center, card...
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  • Dr. Joshua Burns - Stanford CMT Conference 2015 - Duration: 45 minutes.

    • 2 years ago
    • 156 views
    Joshua Burns, MD, PhD: Joshua Burns combines clinical and research training in Podiatry and Physiotherapy. He has re-ceived Postdoctoral Fellowships at The Children’s Hospital at Westmead and The U...
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  • Carly Siskind - Stanford CMT Conference 2015 - Duration: 17 minutes.

    • 2 years ago
    • 58 views
    Carly Siskind, MS, LCGC, Senior Genetic Counselor, Assistant Clinical Professor-Affiliated, Lucile Packard Children’s Hospital at Stanford: Prior to her arrival at Stanford, Ms. Siskind worked in n...
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  • Dr. Frank Longo - Stanford CMT Conference 2015 - Duration: 17 minutes.

    • 2 years ago
    • 340 views
    Frank M. Longo, MD, PhD, Professor and Chairman, Neurology and Neurological Sciences, Stanford Medicine:
    Dr. Longo is Professor and Chairman of the Department of Neurology and Neurological Sciences...
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  • Elizabeth Ouellette - Stanford CMT Conference 2015 - Duration: 17 minutes.

    • 2 years ago
    • 79 views
    Elizabeth Oullette, Vice-Chair, Charcot-Marie-Tooth Association:
    Elizabeth Ouellette is the Vice-Chair of the Charcot-Marie-Tooth’s Association’s (CMTA) Board of Directors.
    Her volunteer role withi...
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  • Bethany Meloche - Stanford CMT Conference 2015 - Duration: 24 minutes.

    • 2 years ago
    • 105 views
    Bethany Meloche, Director of Social Media, Charcot-MarieTooth Association Director:
    CMTA Director of Social Media and motivational speaker, Bethany Meloche, is an honest and engaging storyteller. B...
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  • Dr. John Day - Myotonic Dystrophy from Head to Toe - Duration: 19 minutes.

    • 1 year ago
    • 1,840 views
    Stanford's 3rd Annual Myotonic Dystrophy Information Meeting

    "Myotonic Dystrophy from Head to Toe: The Systems that are affected. Research update: where are we going?"

    John W. Day, MD, PhD, Profe...
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  • Penni Warford - Advocacy (Part 1) - Duration: 22 minutes.

    • 1 year ago
    • 33 views
    Stanford's 3rd Annual Myotonic Dystrophy Information Meeting

    "How to Advocate for Yourself with Your Healthcare Team" Part 1

    Penni Warford, Parent, Advocate:

    Mrs. Warford is a parent, grandparen...
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  • Dr. Jacinda Sampson - Advocacy (Part 2) - Duration: 16 minutes.

    • 1 year ago
    • 33 views
    Stanford's 3rd Annual Myotonic Dystrophy Information Meeting

    "How to Advocate for Yourself with Your Healthcare Team" Part 2

    Jacinda Sampson, MD, PhD, Neurogeneticist, Neurologist, Stanford Medic...
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  • Laurence Mignon - Ionis Research Update - Duration: 12 minutes.

    • 1 year ago
    • 235 views
    Stanford's 3rd Annual Myotonic Dystrophy Information Meeting

    "Research Update from Ionis (formerly Isis)"

    Laurence Mignon, PhD, Director of Clinical Ionis Pharmaceuticals, Inc.:

    Dr. Mignon is re...
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  • Rob Besecker - ForEver Strong - Duration: 26 minutes.

    • 1 year ago
    • 171 views
    Stanford's 3rd Annual Myotonic Dystrophy Information Meeting

    Rob Besecker, MBA:

    Rob has been living with heart and muscle disease for the past decade. He is the author of the forthcoming book, "F...
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  • Carleigh Kude - Prepare to Go to College! (Part 2) - Duration: 7 minutes, 55 seconds.

    • 1 year ago
    • 15 views
    Stanford's Duchenne Meeting 2016

    Carleigh A. Kude, MPA, Disability Advisor, Stanford's Office of Accessible Education

    Carleigh is a disability adviser at Stanford’s Office of Accessible Education...
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  • Dr. Beth Kaufman - Matters of the Heart: Early and Late Stage Cardiac Treatment of DMD (Part 1) - Duration: 33 minutes.

    • 1 year ago
    • 21 views
    Stanford's Duchenne Meeting 2016

    Beth D. Kaufman, MD, Cardiologist, Lucile Packard Children's Hospital at Stanford

    Dr. Kaufman is a Clinical Associate Professor of Pediatrics, as well as a member...
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  • Dr. Beth Kaufman - Matters of the Heart: Early and Late Stage Cardiac Treatment of DMD (Part 2) - Duration: 11 minutes.

    • 1 year ago
    • 37 views
    Stanford's Duchenne Meeting 2016

    Beth D. Kaufman, MD, Cardiologist, Lucile Packard Children's Hospital at Stanford

    Dr. Kaufman is a Clinical Associate Professor of Pediatrics, as well as a member...
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  • Siddarth Karnala - Living Life to the Fullest - Duration: 6 minutes, 32 seconds.

    • 1 year ago
    • 21 views
    Stanford's Duchenne Meeting 2016

    Siddarth is a college student living with DMD.
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  • Carleigh Kude - Prepare to Go to College! (Part 1) - Duration: 33 minutes.

    • 1 year ago
    • 46 views
    Stanford's Duchenne Meeting 2016

    Carleigh A. Kude, MPA, Disability Advisor, Stanford's Office of Accessible Education

    Carleigh is a disability adviser at Stanford’s Office of Accessible Education...
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  • Tina Duong - Keep Moving... Therapy, Robotics, Equipment & Assistive Tech (Part 1) - Duration: 33 minutes.

    • 1 year ago
    • 18 views
    Stanford's Duchenne Meeting 2016

    Tina Duong, MPT, Research Physical Therapist, Stanford Neuromuscular Program

    Ms. Duong is a research physical therapist at Stanford with over 10 years of clinical...
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  • Tina Duong - Keep Moving... Therapy, Robotics, Equipment & Assistive Tech (Part 2) - Duration: 28 minutes.

    • 1 year ago
    • 11 views
    Stanford's Duchenne Meeting 2016

    Tina Duong, MPT, Research Physical Therapist, Stanford Neuromuscular Program

    Ms. Duong is a research physical therapist at Stanford with over 10 years of clinical...
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  • Dr. Josh Sternbach - Masks & Good Sleep Hygiene - Duration: 29 minutes.

    • 1 year ago
    • 48 views
    Stanford's Duchenne Meeting 2016

    Josh Sternbach, MD, San Francisco Critical Care Medical Group, California Pacific Medical Center

    Dr. Sternbach did his residency and chief residency in internal m...
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  • Dr. Jacinda Sampson - DMD Research: What's Next? - Duration: 34 minutes.

    • 1 year ago
    • 30 views
    Stanford's Duchenne Meeting 2016

    Jacinda Sampson, MD, PhD, Neuromuscular Neurogeneticist, Stanford Medicine

    Dr. Sampson is a neurogeneticist and she enjoys caring for adults and children in the m...
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  • Dr. John Day - CMT 2016 Welcome - Duration: 6 minutes, 14 seconds.

    • 1 year ago
    • 80 views
    Stanford's Charcot Marie Tooth (CMT) Family Meeting 2016

    John W. Day, MD, PhD, Director, Neuromuscular Program, Stanford Medicine

    Dr. Day has over 25 years of experience in diagnosing, treating a...
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  • David Misener - Brace Yourself (Part 1) - Duration: 33 minutes.

    • 1 year ago
    • 39 views
    Stanford's Charcot Marie Tooth (CMT) Family Meeting 2016

    David B. Misener, BSc (HK), CPO, MBA, Clinical Prosthetics & Orthotics LLC

    David Misener is an American Board Certified Prosthetist and Or...
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  • David Misener - Brace Yourself (Part 2) - Duration: 9 minutes, 5 seconds.

    • 1 year ago
    • 24 views
    Stanford's Charcot Marie Tooth (CMT) Family Meeting 2016

    David B. Misener, BSc (HK), CPO, MBA, Clinical Prosthetics & Orthotics LLC

    David Misener is an American Board Certified Prosthetist and Or...
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  • Arnie Davis - Expanding the Possibilities of Footwear for People with CMT (Part 1) - Duration: 33 minutes.

    • 1 year ago
    • 68 views
    Stanford's Charcot Marie Tooth (CMT) Family Meeting 2016

    Arnie Davis, C. Ped, Davis Foot Comfort Center

    Arnie Davis is a certified pedorthist, master shoemaker, author, and the owner of Davis Foo...
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  • Arnie Davis - Expanding the Possibilities of Footwear for People with CMT (Part 2) - Duration: 2 minutes, 14 seconds.

    • 1 year ago
    • 37 views
    Stanford's Charcot Marie Tooth (CMT) Family Meeting 2016

    Arnie Davis, C. Ped, Davis Foot Comfort Center

    Arnie Davis is a certified pedorthist, master shoemaker, author, and the owner of Davis Foo...
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  • Elizabeth Misener - The Science of Happiness - Duration: 32 minutes.

    • 1 year ago
    • 39 views
    Stanford's Charcot Marie Tooth (CMT) Family Meeting 2016

    Elizabeth K. Misener, PhD, LMSW, Vitality at Work

    Elizabeth Misener is an Assistant Professor in the Masters of Social Work Program at the...
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  • Julie Muccini - Aids for Daily Living - Duration: 23 minutes.

    • 1 year ago
    • 52 views
    Stanford's Charcot Marie Tooth (CMT) Family Meeting 2016

    Julie Muccini, MS, OTR/L, Occupational Therapist, Stanford Hospital

    Since 2009, Ms. Muccini has been an Inpatient Rehabilitation Neuroclin...
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  • Gilles Bouchard - STAR Research Update - Duration: 24 minutes.

    • 1 year ago
    • 35 views
    Stanford's Charcot Marie Tooth (CMT) Family Meeting 2016

    Gilles Bouchard, Charman of the Board, CMT Association

    Mr. Bouchard's son, Yohan, was diagnosed with CMT1A in 2001. He has been a voluntee...
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  • Dr. John Day - CMT General Update (Part 1) - Duration: 33 minutes.

    • 1 year ago
    • 80 views
    Stanford's Charcot Marie Tooth (CMT) Family Meeting 2016

    John W. Day, MD, PhD, Director, Neuromuscular Program, Stanford Medicine

    Dr. Day has over 25 years of experience in diagnosing, treating a...
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