Rare Advocacy Movement

The Youtube channel for the Living Rare community, by the real world people of the rare disease community. What does this mean? We are not influenced by industry dollars. Instead, we engage in mutually beneficial collaborations and partnerships for the best interests of the community. We are community-based activists that no longer rely on having our issues addressed by the professionals of the advocacy landscape. We are a global network of naturally diverse community activists addressing rare disease issues, disability rights, equitable inclusion, health equity, health justice and therapeutic development.

"Nothing About Us, Without Us."

Find us across social media by @rareAdvocacy