Omirge sen

Public Fund for Patient Support for NMZ. The main activity of our Foundation is providing support to families whose members have very complex neuromuscular diseases (hereinafter referred to as NMD), associated with a very painful and irreversible process of muscle breakdown: myopathies (Duchenne, Becker), spinal muscular atrophy (SMA), congenital myasthenia, Charcot-Marie syndrome and others. These diagnoses presuppose the presence of disability in childhood, when often healthy children at birth, at first glance, gradually lose the ability to move, and in the absence of appropriate support for the body with the necessary life support devices or medications, early mortality.