ECCEbySaybee

This page was started over 6 years ago.  My son Christian, was born with a rare from of dwarfisim.  Thanatophoric dysplasia type 1.  He lived to be 3 1/2 years old.   He beat may odds and lived for much longer than the drs said he would.  Please refrain from leaving hate comments.   I have had to delete and report many people already.   I would like to say thank you though, to those that have left very heartfelt comments.  your compassion means very much.  I miss my son so much.  He was full of love and happiness.   If you have questions about TDT1 or about Christian, please feel free to ask.  However, I will not reply to any repulsive comments.  I will delete, report and block them.     We have decided to start adding more content to this page.   Christian's spirit is still with us.   We want to share our family and our love we have for him.   We want to share how life can continue after such a traumatic loss of a loved one can still go on.