Indian Organization for Rare Diseases

Set up in 2005 in India and the USA, Indian Organization for Rare Diseases (IORD) is an umbrella organization and represent interests of all rare disease patients, patient support groups, health policy advocates and health care providers for rare diseases in India. We invite stakeholders to lend a helping hand to strengthen the cause of Rare Disease movement by actively collaborating/partnering with us as we believe the goal is reached faster when we are united. 

Who can join us?

RARE DISEASE PATIENTS: 👉 https://bit.ly/Form_for_RareDiseasePatients

NGOs/ PATIENTS ORGANISATIONS: The learnings we have gained to address RD patient issues and the new ideas we bring on the table can help you grow your resources. 👉 https://bit.ly/Form_for_VolunteersDoctorsExperts

VOLUNTEER/RESEARCHER/EXPERT: If you are an expert, you can work for the change you want to see as your one step can make a big difference to the life of a rare disease patient. 👉 https://bit.ly/Form_for_NGOsPatientsOrganization