ZC4H2 Research Foundation

ZC4H2 Associated Rare Disorders (ZARD) is an extremely rare genetic condition which affects people in many ways and has a profound effect on their quality of life as well as that of their families.

The ZC4H2 Research Foundation aims to promote and support the development of viable therapies and standards of clinical care for the treatment of ZARD, in the hope of improving the lives of those affected by it, and to be a central hub of information for the ZARD community.