Wolf Hirschhorn Syndrome Trust UK

Channel for the registered charity supporting people diagnosed with Wolf-Hirschhorn Syndrome (WHS), as well as their families and carers. WHS, also known as 4p–, is a rare (approx. 1 in 50,000 live births) chromosomal disorder caused by a partial deletion of genes from the short arm of chromosome 4. People with WHS experience a range of serious health problems, as well as physical and learning disabilities. The Wolf Hirschhorn Syndrome Trust brings affected people together, raises awareness, organises events, fundraises and supports research.