Usher Syndrome India (USH India)

Usher syndrome is the most common genetic cause of combined hearing loss and vision loss. It is estimated to affect 56,000 to 280,000 people in India and 400,000+ worldwide as of 2022.

In 2008, the Usher Syndrome Coalition (www.usher-syndrome.org) was formed. It aims to identify and connect those living with Usher syndrome worldwide with researchers, with vital information, and with others affected by Usher syndrome. It has members in 74+ countries. 

In 2020, the Coalition started Usher Syndrome India (USH India) to support the Usher community in India.

You are not alone!

Connect with the USH India Community: 
Email: info.india@usher-syndrome.org 
Facebook Page: https://www.facebook.com/groups/620209561981370