Júlia Pontes Teixeira Domingues

This is the story of our fight for Júlia's life. From the first signs to the diagnosis of CLN7, an ultra-rare disease, we are racing against time.

Here, we share our journey to save our daughter and bring hope to many other children.

In the U.S., we found Elpida Therapeutics, which, in partnership with the Southwestern Medical Center at the University of Texas, has developed the necessary medication and now needs investments to complete the third phase of application testing. With this, we will be able to include our daughter in the study and also help save the lives of other children.

Watch, share, and help transform this story. 💚🙏

E-mail: doe@salveajulinha.com.br

#SaveJulinha #CLN7 #DonateHope