Rare Disorders NZ

Rare Disorders NZ is the respected voice of rare disorders in New Zealand. We are the only national organisation supporting all New Zealanders who live with a rare condition, and the people who care for them.

We are the connector hub and collective voice of the 300,000 New Zealanders living with a rare disorder and their families. We provide a strong common voice to advocate for health policy and a healthcare system that works for those with rare diseases.