Rare By Design

Rare by Design is a nonprofit organization that works towards creating awareness, inclusion and representation for individuals with rare diseases and disabilities. We focus on living life positively to support our community and their families. Founded on the belief that everyone should celebrate the rare that makes us unique and extraordinary. Our events strive to foster community engagement for individuals with rare diseases and disabilities. Supporting Rare by Design means you are giving back to local and national nonprofits that assist research, human growth, self-advocacy and empowerment.

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