mr2als

This is my journey with bulbar onset ALS. The good the bad the ugly. I started having trouble speaking in Feb. of 2021. It was so slight no one could tell. By March it was worse so I started seeing doctors. By dr number 4 I was diagnosed with this disease. Consequent visits to several specialists, neurologists, ent’s, etc 10 in all, were certain I did not have als. By the end of June I had to beg my way back to see one of them who was shocked that he had missed it and indeed I did have bulbar onset als. I was told life expectancy for this form was 1-2 years and I was 7-8 months in, luckily I’m bad at math so who knows how much time I have. I took a line from a song by rise against as my motto “when faced with tragedy we come alive or come undone”  so here I am, to come alive while I can. I got married on a mountain top 3 weeks after being diagnosed. So here we go, my personal diary/journey of what’s inside  a dying middle age wanna be skater, cyclist, triathlete,  husband, father.