Jar Of Hope

Our Mission for the JAR of Hope is dedicated to bringing awareness to Duchenne Muscular Dystrophy - and raise funds directed to find a cure. 
James Anthony Raffone is 4 years old. He was diagnosed with Duchenne Muscular Dystrophy on September 13, 2013. Without a cure, he will live with Duchenne for less than 25 years.
Duchenne Muscular Dystrophy affects about 300,000 boys worldwide. Currently there are only 120 known cases of Jamesy’s mutation of Duchenne in the U.S. Big pharma will not produce a cure for such a small demographic. We need the FDA to approve clinical trials that have since been halted. Due to government red tape, these boys are rapidly declining in health. Based on current scientific knowledge Duchenne could be treatable for this generation of boys. The limiting factor of treating these children is funding, not the lack of science.
Please visit jarofhope.org to learn more – make a donation and join us in Our fight to end Duchenne.