International WAGR Syndrome Association

Welcome to the International WAGR Syndrome Association.  We are a 501(c)(3) nonprofit organization with the mission of promoting awareness, facilitating research, and supporting families affected by WAGR Syndrome.  WAGR stands for W--Wilms tumor, about 50% of individuals with WAGR develop this kidney cancer; A--Aniridia, absence of the iris and visual complications; G, genitourinary abnormalities; and R, range of development delays. Not all are experienced by people diagnosed with the condition. The IWSA represents approximately 270 families from 44 countries. We host an annual event called WAGR Weekend and it is held in a different location each year.  Recently the event is alternating years in the US and Europe.