InsideSDS

Please join Nicole and Michelle for our new show, Inside SDS!

We are still the same two moms, working to connect patients, families, caregivers, and support members with clinicians, researchers, and knowledgeable professionals dedicated to supporting those with SDS.

Shwachman-Diamond Syndrome is a rare disorder that affects only 1 in every 150,000 births. It is characterized by bone marrow failure, pancreatic insufficiency, and skeletal abnormalities. Due to its variable presentation, it is likely underdiagnosed.