Cystinosis Research Network

The Cystinosis Research Network (CRN) is an all-volunteer, non-profit organization dedicated to supporting and advocating research, providing family assistance and educating the public and medical communities about Cystinosis. 

Cystinosis is a rare, genetic metabolic disease that causes the amino acid cystine to accumulate in various organs of the body. Without specific treatment, children with Cystinosis develop end stage kidney failure at approximately age nine. As treatments have improved, children can now live into adulthood and live productive lives.

The CRN YouTube channel aims to inform and inspire.