Cure VCP Disease - Official Channel

Cure VCP Disease, Inc. was formed to drive efforts to cure diseases related to mutations of the Valosin Containing Protein gene.  This includes the disease VCP-associated multisystem proteinopathy (MSP-1), also known as VCP disease, and IBMPFD (Inclusion Body Myopathy associated with Paget’s disease of bone and Frontotemporal Dementia).  The specific objectives of our organization are:
1) to provide global education and awareness of VCP diseases to doctors, researchers, industry, patients, caregivers and the general public;
2) to develop and maintain a global patient registry of VCP disease patients;
3) to develop and maintain a fundraising vehicle to support awareness and education efforts;
4) to collaborate with other global organizations and entities which are promoting a cure for diseases which have symptoms similar to VCP diseases;
5) to sponsor, host and/or participate in events and activities that promote efforts to cure VCP diseases.