Bardet Biedl Syndrome Foundation

The Bardet Biedl Syndrome Foundation is a registered 501(c)3 non-profit agency that connects families and shares information on research, treatment and therapies for Bardet Biedl Syndrome (BBS). Follow along as we give the latest updates on BBS, hear from leading experts about cutting edge research, ask questions of doctors and specialists who have experience treating lots of people with BBS, and connect with and learn from other BBS families.