ALS:FTS

Hi there.  My name is Vashti.  It’s pronounced VOSH-tee, and yes it is my real name.  No, I’m not Indian, though the name IS Persian.  It’s an obscure Biblical name.  Look it up.

I was diagnosed with ALS in 2014, ten days before my 39th birthday, and I’m just trying to figure this shit out.

I’ve been feeling on and off like I should start some kind of online journal, something public, to document what this is like. I think it would be interesting to see it from minor problem to the inevitable, it might give someone out there an idea of what to expect. There’s precious little out there documenting the process, and as my progression is so slow, I think I could talk a lot better about the minutiae. And it’s the little things that add up after all, stupid shit that you’d never know you’re not alone in because no one else ever mentions it. I kinda want to do that for myself, too, to keep track of my own progress, to document the good days and the bad ones.