Salla Treatment and Research Foundation (STAR)

The Salla Treatment and Research (STAR) Foundation is a 501 (c) 3 tax-exempt charitable organization dedicated to supporting and advancing Salla disease treatments, research, education, awareness, and family networks.  
 
STAR was established in 2018 by Ben Foglio’s parents, Jessica and Michael Foglio, and was originally known as "A STAR for Ben" in honor of their dynamo son.  STAR's mission is to accelerate the prospects for effective medical treatments for those affected with free sialic acid storage disorders including Salla disease.  Since 2018,  STAR's wonderful community has donated over $1 million has been for research and has grown to a global community of over 100 families.  Nearly 50 researchers, making up the Free Sialic Acid Storage Disorders (FSASD) Consortium are working together to find cures and treatments.  
 
To learn more, visit our website at:   https://www.star-foundation.io/  or reach out to info@sallaresearch.org