Minnesota Rare Disease Advisory Council

Minnesota Rare Disease Advisory Council is a result of the grassroots efforts of Minnesota patients and families whose lives have been affected by rare disease. The Council was established in 2019 by the Minnesota state legislature to ensure that every patient diagnosed with a rare disease has access to a timely diagnosis, appropriate care, and an effective treatment. The Council consists of rare disease experts from across health systems and aligned disciplines who work tirelessly to create a strong responsive, rare disease community.

Our mission envisions a world where every Minnesota citizen living with a rare disease has access to a timely diagnosis, comprehensive care, and an effective treatment.

Learn more about the Minnesota Rare Disease Advisory Council https://www.mnraredisease.org