Kristina | Patient Advocate 

Hi, I’m Kristina! Spoonie, writer, patient advocate, and lover of rescue fur babies. It took me nearly 5 years to get diagnosed with seronegative Sjogren’s and Myasthenia Gravis. Throw in hEDS and I was a barrel of fun for doctors.

I quickly realized that these diseases are highly overlooked and misunderstood. Sjogren’s isn't just dry eye and dry mouth, but a systemic disease. MG doesn’t always present with a dropping eye. While these diseases can never be cured, I am on the other side – feeling better than I have in years. Self-advocacy played a huge role in my journey.

I feel a strong passion to help others – to share the lessons I learned and maybe, just maybe, help expedite their journey to answers, validation, and better care.

In short, I am:
-a Board Certified Patient Advocate.
-an autoimmune and connective tissue patient who is regaining her life.
-experienced in advocating for patients as a former Healthcare Services Coordinator with the Muscular Dystrophy Association