CMT- A Rare Disease in India

There are many Rare diseases in India.
Rare disease are those for which there is lesser number of known patients and for which the cure has not been possible yet.
However it doesnot mean that the cure is impossible. Polio was once a Rare disease until the vaccination has been developed for Poliomyletis virus in 1990s.
The problem is that people with Rare diseases are not united. Our mission is to unite them, to make a representation for particular Rare disease so that Big Pharmaceutical Companies or The governments makes effort to "conduct Researches for the Cure" to these Rare diseases.

Let us first learn, "what exactly the problem we have", "How These problems can be cured", "Which type of Researches we require".
And then make united efforts for the particular resarches.