Harry's Hydrocephalus Awareness Trust -Harry's HAT

We are a user-led charity, founded by the parents of a little boy who was born with hydrocephalus. We strive to make life better for all children with hydrocephalus (often referred to as water on the brain) and the families who love and care for them.  

To do this we:
-Raise awareness of paediatric hydrocephalus to increase understanding about the condition and its impact
-Fund front-line health care professionals to access training about hydrocephalus and so improve patient care
-Provide help & access to peer-to-peer support to help reduce isolation for families affected 
-Campaign for better awareness of head circumference measurement as tool to enable early diagnosis.

There is no cure for hydrocephalus from which 1 in every 770 babies will develop each year, but there is treatment and in most cases the earlier the diagnosis the better the outcome for the child. As families whose children battle this condition on a daily basis we believe that together we can make a difference.