CDKL5 Brasil

CDKL5 Brasil is a non-profit non-governmental organization founded in 2023, composed of parents and family members of patients affected by CDKL5 syndrome. Our group operates nationwide and has the following main objectives:

- Disseminate scientific advancements and treatments at the national and international levels.
- Provide support and improve the quality of life for individuals affected by CDKL5 and their families.
- Increase the visibility of the syndrome in clinical and social contexts.
- Raise funds for CDKL5 research and other related diseases.
- Facilitate meetings between affected families, specialized medical professionals, and national and international researchers.
- Participate in international cooperation programs.
- Acknowledge the importance of supporting families affected by CDKL5 syndrome.
- Promote collaboration between medical teams and families.