The Alex YiuTube Channel

The purpose of this YouTube channel is to share Alex’s original music and encourage others with disabilities or rare diseases. 
Alex  has a sweet smile that melts the hearts of everyone, but for over 10 years a cruel debilitating disease slowly robbed his abilities, one after another. Alex is physically and verbally challenged, but is cognitively conscious. Countless medical and genetic testing and some of the best physicians, scientists and researchers in the world were perplexed. In 2018, through miraculous intervention, Alex’s genetic data was reanalyzed and he was found to have a newly discovered, rare, non-inherited, spontaneous genetic disease called NEDAMSS (Neurodevelopmental Disorder with Regression, Abnormal Movements, Loss of Speech, and Seizures)  or IRF2BPL related disorder. There is no treatment or cure.

Alex’s Website:  https://www.alexsodyssey.com/
UnDiagnosed Support Group:   https://www.cureundx.com/
UNDIAGNOSED Film Website:   https://undiagnosedfilm.com/