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Name:
CHERUBS
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38
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Dec 18, 2007
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3 months ago
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CHERUBS was chosen as a YouTube charity!!! We received one of the 300 video cameras given to charities to help raise cause awareness on YouTube. Stay tuned for lots of CHERUBS videos!
CHERUBS is an international organization for families and care-givers of children and adults who are diagnosed with Congenital Diaphragmatic Hernia (CDH). As of January, 2008, we have over 2100 members in all 50 states and 33 countries.
What is CDH?
Congenital Diaphragmatic Hernia (CDH) occurs in approximately 1 in every 2,500 births (1,600 cases in the U.S. each year). The cause of CDH is not yet known. CDH occurs when the diaphragm fails to form or to close totally and an opening allows abdominal organs into the chest cavity. This inhibits lung growth. Survival rates depend on the types and number of organs involved in the herniation and the amount of lung tissue available. Roughly 50% of babies born with CDH do not survive.
CHERUBS is an international organization for families and care-givers of children and adults who are diagnosed with Congenital Diaphragmatic Hernia (CDH). As of January, 2008, we have over 2100 members in all 50 states and 33 countries.
What is CDH?
Congenital Diaphragmatic Hernia (CDH) occurs in approximately 1 in every 2,500 births (1,600 cases in the U.S. each year). The cause of CDH is not yet known. CDH occurs when the diaphragm fails to form or to close totally and an opening allows abdominal organs into the chest cavity. This inhibits lung growth. Survival rates depend on the types and number of organs involved in the herniation and the amount of lung tissue available. Roughly 50% of babies born with CDH do not survive.
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What is CDH?Congenital Diaphragmatic Hernia (CDH) occurs in approximately 1 in every 2,500 births (1,600 cases in the U.S. each year). The cause of CDH is not yet known. The diaphragm is formed in the first trimester of pregnancy and controls the lungs' ability to inhale and exhale. CDH occurs when the diaphragm fails to form or to close totally and an opening allows abdominal organs into the chest cavity. This inhibits lung growth. Every patient diagnosed with CDH is different. Survival rates depend on the types and number of organs involved in the herniation and the amount of lung tissue available. There are many surgical procedures and complications that may or may not occur with each individual, including in utero surgery.Roughly 50% of babies born with CDH do not survive. Of the 50% that do survive, most will endure long hospital stays, feeding issues, asthma and other problems. A few of the survivors suffer from severe long-term medical issues. CDH occurs as frequently as Spina Bifida and Cystic Fibrosis, yet there is very little research being done and virtually no media coverage.
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Thank you for sending me a friend request on YouTube. I am an upcoming and aspiring poet from Markham, Ontario, Canada. I have been writing poetry and music for the past five years and currently have four poems that are published and featured in anthologies both in Canada and the United States.
When my younger brother was born with CDH in the year 2000, he was extremely ill and my parents spent almost three months going back and forth from home to Sick Children's Hospital in Toronto. The doctors at Mount Siani told my parents that my brother would not live and recommended that they should abort him immediately.
Sincerely,
Matt (Zeppelin129)
-Bonnie and Lucy