CHERUBS - Congenital Diaphragmatic Hernia Support
cdhsupport's Channel
 
 
Hello, you either have JavaScript turned off or an old version of Adobe's Flash Player. Get the latest Flash player.
CDH Kids Song "I'm A Real Live Cherub"
CHERUBS 2008 International Member Conference
 
 
EYES WIDE OPEN
Meadow, 10mins Old
Profile
 
Name:
CHERUBS
Channel Views:
2,709
Age:
36
Joined:
December 18, 2007
Last Sign In:
1 month ago
Subscribers:
43
CHERUBS was chosen as a YouTube charity!!! We received one of the 300 video cameras given to charities to help raise cause awareness on YouTube. Stay tuned for lots of CHERUBS videos!

CHERUBS is an international organization for families and care-givers of children and adults who are diagnosed with Congenital Diaphragmatic Hernia (CDH). As of January, 2008, we have over 2100 members in all 50 states and 33 countries.

What is CDH?

Congenital Diaphragmatic Hernia (CDH) occurs in approximately 1 in every 2,500 births (1,600 cases in the U.S. each year). The cause of CDH is not yet known. CDH occurs when the diaphragm fails to form or to close totally and an opening allows abdominal organs into the chest cavity. This inhibits lung growth. Survival rates depend on the types and number of organs involved in the herniation and the amount of lung tissue available. Roughly 50% of babies born with CDH do not survive.
About Me:
 
CHERUBS is an international organization for families and care-givers of children and adults who are diagnosed with Congenital Diaphragmatic Hernia (CDH). As of January, 2008, we have over 2100 members in all 50 states and 33 countries. Our Board Members include the founding father of in-utero surgery, genetic counselors, epidemiologists, nurse practitioners, parents of CDH survivors and non-survivors, and some of the best pediatric surgeons in the world. We are a volunteer-run organization and a United States Internal Revenue Service recognized 501(c)III Non-Profit Organization.
Country:
United States
Hobbies:
What is CDH?Congenital Diaphragmatic Hernia (CDH) occurs in approximately 1 in every 2,500 births (1,600 cases in the U.S. each year). The cause of CDH is not yet known. The diaphragm is formed in the first trimester of pregnancy and controls the lungs' ability to inhale and exhale. CDH occurs when the diaphragm fails to form or to close totally and an opening allows abdominal organs into the chest cavity. This inhibits lung growth. Every patient diagnosed with CDH is different. Survival rates depend on the types and number of organs involved in the herniation and the amount of lung tissue available. There are many surgical procedures and complications that may or may not occur with each individual, including in utero surgery.Roughly 50% of babies born with CDH do not survive. Of the 50% that do survive, most will endure long hospital stays, feeding issues, asthma and other problems. A few of the survivors suffer from severe long-term medical issues. CDH occurs as frequently as Spina Bifida and Cystic Fibrosis, yet there is very little research being done and virtually no media coverage.
Channel Comments (3)
blynnhaas (3 months ago)
I had no idea you guys even existed. I am so grateful that you liked my video. Even though my daughter has recovered from her CDH, she is now struggling with Juvenile Idiopathic Arthritis, because of an immune deficiancy desease from her CDH. These videos bring tears to my eyes. Thank you for subscribing. God Bless!
-Bonnie and Lucy
Drowzee123 (3 months ago)
I have CDH its Brandon Hall lol
angelgregzion (9 months ago)
Hi Dawn, thank you for favoriting Gregory's video. It really makes me feel included in a family of people who are affected by this aweful birth defect. I love what you and everyone else is doing to educate people about CDH. I'm always praying and thinking of you all. ~ Rene