CHERUBS - Congenital Diaphragmatic Hernia Support
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Congenital Diaphragmatic Hernia - CHERUBS
"Cherub Rap"
 
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Profile
 
Name:
CHERUBS
Channel Views:
7,149
Total Upload Views:
47,037
Age:
38
Joined:
Dec 18, 2007
Latest Activity:
3 months ago
Subscribers:
91
CHERUBS was chosen as a YouTube charity!!! We received one of the 300 video cameras given to charities to help raise cause awareness on YouTube. Stay tuned for lots of CHERUBS videos!

CHERUBS is an international organization for families and care-givers of children and adults who are diagnosed with Congenital Diaphragmatic Hernia (CDH). As of January, 2008, we have over 2100 members in all 50 states and 33 countries.

What is CDH?

Congenital Diaphragmatic Hernia (CDH) occurs in approximately 1 in every 2,500 births (1,600 cases in the U.S. each year). The cause of CDH is not yet known. CDH occurs when the diaphragm fails to form or to close totally and an opening allows abdominal organs into the chest cavity. This inhibits lung growth. Survival rates depend on the types and number of organs involved in the herniation and the amount of lung tissue available. Roughly 50% of babies born with CDH do not survive.
About Me:
 
CHERUBS is an international organization for families and care-givers of children and adults who are diagnosed with Congenital Diaphragmatic Hernia (CDH). As of January, 2008, we have over 2100 members in all 50 states and 33 countries. Our Board Members include the founding father of in-utero surgery, genetic counselors, epidemiologists, nurse practitioners, parents of CDH survivors and non-survivors, and some of the best pediatric surgeons in the world. We are a volunteer-run organization and a United States Internal Revenue Service recognized 501(c)III Non-Profit Organization.
Country:
United States
Interests:
What is CDH?Congenital Diaphragmatic Hernia (CDH) occurs in approximately 1 in every 2,500 births (1,600 cases in the U.S. each year). The cause of CDH is not yet known. The diaphragm is formed in the first trimester of pregnancy and controls the lungs' ability to inhale and exhale. CDH occurs when the diaphragm fails to form or to close totally and an opening allows abdominal organs into the chest cavity. This inhibits lung growth. Every patient diagnosed with CDH is different. Survival rates depend on the types and number of organs involved in the herniation and the amount of lung tissue available. There are many surgical procedures and complications that may or may not occur with each individual, including in utero surgery.Roughly 50% of babies born with CDH do not survive. Of the 50% that do survive, most will endure long hospital stays, feeding issues, asthma and other problems. A few of the survivors suffer from severe long-term medical issues. CDH occurs as frequently as Spina Bifida and Cystic Fibrosis, yet there is very little research being done and virtually no media coverage.
Channel Comments
TarheelMama9714 (11 months ago)
awesome! I didn't realize we were chosen...
sxasher2 (1 year ago)
Thank you for your good work.
Zeppelin129 (1 year ago)
Dear CHERUBS,

Thank you for sending me a friend request on YouTube. I am an upcoming and aspiring poet from Markham, Ontario, Canada. I have been writing poetry and music for the past five years and currently have four poems that are published and featured in anthologies both in Canada and the United States.
When my younger brother was born with CDH in the year 2000, he was extremely ill and my parents spent almost three months going back and forth from home to Sick Children's Hospital in Toronto. The doctors at Mount Siani told my parents that my brother would not live and recommended that they should abort him immediately.
Zeppelin129 (1 year ago)
My brother was born at Markham Stoufville Hospital at 31 weeks and he only weighed 4 pounds and 6 ounces. His heart stopped twice and thankfully the doctors managed to revive him. He was flown to Sick Children's Hospital by helicopter ambulance and survived a four hour surgery when he was only four days old. The surgery was a success; however, he had many complications on his road to recovery. He had fluid filling up in his lungs and swelling in his brain. He would now have to learn to eat and breathe on his own just like a "normal" baby. The doctors wanted to put a feeding tube in my brother's stomach but my parents refused because of their intuition. Slowly, he got stronger and healthier and he learned to eat and breathe on his own. He defied all the odds against him and continues to thrive and inspire all those who he meets.
Zeppelin129 (1 year ago)
Today, brother is nine years old and despite the above complications, he is one of the most intelligent students in his class and is living his life as if there was never anything wrong with him at all. Together, my family has shown me how to overcome any obstacle that I may face later in time and I truly believe that something outside of any man's control showed me that nothing is impossible.

Sincerely,

Matt (Zeppelin129)
kazzles79 (2 years ago)
Dawn this is so amazing I was wondering if you could possibly add Alicia's video that she has on here? I'd be so greatful but this is brilliant =] My daughter was also a CDH baby who grew her wings after a six day battle love and support to all the other CDH angels, babies and their wonderful parents xoxox
blynnhaas (2 years ago)
I had no idea you guys even existed. I am so grateful that you liked my video. Even though my daughter has recovered from her CDH, she is now struggling with Juvenile Idiopathic Arthritis, because of an immune deficiancy desease from her CDH. These videos bring tears to my eyes. Thank you for subscribing. God Bless!
-Bonnie and Lucy
Drowzee123 (2 years ago)
I have CDH its Brandon Hall lol
angelgregzion (3 years ago)
Hi Dawn, thank you for favoriting Gregory's video. It really makes me feel included in a family of people who are affected by this aweful birth defect. I love what you and everyone else is doing to educate people about CDH. I'm always praying and thinking of you all. ~ Rene
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