European Organisation for Rare Diseases

Uploaded videos

Living with a Rare Disease

Patients or family members affected by a rare disease describe what their daily lives are like.

RareConnect - Rare Disease Communities

Videos created with the RareConnect project www.rareconnect.org which is a multi-lingual social network created by EURORDIS and NORD and whose aim it is to connect patients and families living with rare diseases globally in collaboration with the leading patient groups for those rare diseases

EURORDIS Video Contest 2011

Final selection of all entries

Favorite videos

Rare Disease Day 2011 - European Symposium

Interviews recorded in Brussels during Rare Disease Day 2011 (Feb 28) as part of a European Symposium on Rare Diseases organised by EURORDIS