Genetics 101 Webinar





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Published on Feb 17, 2013

By better understanding genetics you can spend more time with your child's doctor discussing the issues at hand and the best methods to treat them. Join the RASopathies Foundation for this presentation titled "Genetics 101".

The RASopathy syndromes include: Noonan syndrome, Noonan syndrome with Multiple Lentigines, Costello syndrome, Cardio-Facio-Cutaneous syndrome, Neurofibromatosis Type 1, NF1-Like and Capillary Malformation-Arteriovenous Malformation. We would like to welcome you to the community and share with you all of the wonderful resources that the RASopathies Foundation and our Noonan Syndrome Community branch have to offer including:

RASopathies Website (Learn about individual syndromes):  www.teamrasopathies.org 

Noonan Syndrome Website:  www.noonansyndrome.me

Monthly Webinar Presentations (Given by experts)

Private Online Support Group: https://www.facebook.com/groups/rasop...

Local Support Groups (Worldwide)

Phone Support Team

Special Needs Gift Store:  www.giftfromyourheart.com

Stay connected by subscribing to our free eNewsletter at Mail Chimp: http://eepurl.com/sUZHT.  Please note that you will receive a confirmation email and must follow the steps to finalize your subscription. The RASopathies Foundation will never share or sell your contact information.

It is important to connect with others who understand what you are going through and can offer support during difficult times. We encourage you to get involved by meeting other families online (www. facebook.com/groups/rasopathies/) and joining a local RASopathies support group in your area (visit our website or email us at info@teamrasopathies.org for details on how to join your local support group). Also, please take advantage of our free online webinars, where expert doctors discuss the topics that mean the most to you. Want to suggest a webinar topic? Email us!

When you are ready, you can also participate by shopping at our online store (A portion of each purchase goes to the Foundation. We have great t-shirts!), fundraising for RASopathies research, making a donation or sharing your connections with the RASopathies Foundation. Did you know that when doctors research one of the RASopathy syndromes, it often leads to unexpected discoveries in the others because the RASopathies are genetically related? That means that if we all work together as a team, we can find effective treatments that will improve the quality of life for people born with a RASopathy syndrome. Thank you for your continued support!


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