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Published on Jul 8, 2015
Karen Groff, whose son has Lennox-Gastaut Syndrome, talks about how her family connected with other people who have a rare epilepsy through the Rare Epilepsy Network (REN). She encourages anyone with a rare epilepsy or their caregiver to enroll in REN because united we can create possibilities in research. Find out more information about the REN at http://www.epilepsy.com/ren. Enroll in the registry at https://ren.rti.org/Enroll.