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Infantile Spasms (Jayson)

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Uploaded on May 19, 2009

Email me at mrs.gaddis@yahoo.com if you have any questions, and I would be happy to help with whatever info I have!
My son Jayson was diagnosed with infantile spasms on 3/1/08. He was 7 months old at the time. He began ACTH injections and Topamax on 3/13/08. He became seizure free on 3/16/08. He continued ACTH injections for 6 weeks, and remained on Topamax. Jayson has now been seizure free for over a year, and was weaned from Topamax in April 2009. I have seen many videos on here of infantile spasms, and thought Jayson's was a great example of these seizures, and thought it might help Moms looking for answers. Remember though that infantile spasms can be MUCH more subtle than Jayson's are here. If any Mom needs someone to talk to or has questions, please feel free to email me. I just want to do anything I can to help raise awareness for infantile spasms, and let other Moms know that there is hope! Jayson is almost 2, is happy, healthy and seizure free.

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