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Published on Aug 5, 2016
On August 1, 2016, PPMD hosted a webinar with PTC Therapeutics to discuss the latest news regarding Translarna. Craig McDonald presented the benefits of Translarna from emerging data and senior leadership from PTC were on hand to answer questions regarding the path forward for the therapy with the FDA. If you or your loved one have experience with Translarna, we encourage you to fill out our Patient Experience Survey so we can continue to compile the experiences of our community with this therapy: www.ParentProjectMD.org/TranslarnaExperience.