 Good afternoon everyone welcome back to this workshop. It's it's such a pleasure to be here today to be surrounded by such a Group such a diverse thinking group of individuals. My name is Sarah Hull. I It's my pleasure to introduce the next session The goal of which is going to be to really drill down on on some of the the questions and the issues that have been touched upon in the morning session related to the the challenges of designing research engaging citizen science in an ethical manner and and developing approaches to oversight of mine. Have I been muted that whole time? Shall I begin again? My name is Sarah Hull and I it's my pleasure to help to moderate the next session, which is going to delve into questions I identify some of these challenges and and hopefully also some concrete models and solutions related to the ethical design and oversight of citizen science. I come to these issues from the perspective of a bioethicist who works at the NIH who works within the federal government For for 16 years. So so quite a long time I am trained as a social scientist who's interested in Soliciting the perspectives of members of the public perspectives that have been missing from debates in bioethics And and yes, I also come at this from the perspective of an IRB chair I am the IRB chair that that PHO mentioned this morning I'm that Sarah and no you're not in trouble for your mini survey Both because it was conducted in a manner that collected the data in a de-identified fashion But also because I'm not here to serve as the ethics police today I'm I'd like to shed the view of of IRBs at least in this space and for purposes of our discussion as an adversarial kind of a relationship. I think there's much to be gained from constructive Conversations on what I think are probably at least on their face shared goals of designing citizen science in a manner that's rigorous responsive and valuable to the communities that It's engaging and working within designed in a way to minimize the harms of the research to the participant and and maximize the benefits designed in a way that's Transparent and holds up to scrutiny And so those are some of the conversations that I hope our panel will will help us to engage in we have a number of diverse perspectives represented on our panel and like the first panel we're going to go in a slightly different order than what's listed here in the in the agenda, which I'll I'll walk us through in a second, but Some of the questions that that I'm hoping will be able to engage with our panelists and as well with everyone else in the room who certainly has Great experiences to bring to bear on these questions So I'm in the world that I work in I'm familiar with a fairly well-described set of research regulations oversight tools and frameworks and I'm interested in exploring to what extent those frameworks can be adapted and applied to the context of citizen science To what extent those frameworks are inadequate and have failed to anticipate the unique Perspectives of new players who are becoming more involved in research in different ways So if I start with the question of what I'm familiar with I'm wondering to what extent what I know plays out in this setting and When we bring in people who are coming at it from different perspectives what values and ethical principles and Formulations of the existing principles can we spell out to? Ensure that this research is conducted in a transparent and ethical manner. So some of the questions we can explore In general, how do we understand the need for independent oversight of research who is now independent from the research Who's inside versus outside and who can give an objective perspective on on the ethics of of what's being proposed? Some how do we think about role-based? responsibilities and obligations when the people Involved are in the science and the design and conduct of the science are different and they're they're shifting into different entities and roles So we're now conceptualizing potentially as citizens as the scientists themselves. What does this mean for shifting obligations? These are some of the ideas that were raised this morning that I think our Would benefit from further exploration. How do we ensure diverse? representation of the various members of the the public In research and how do we protect their rights and interests as as we advance research that's of value to them So I'm coming at this with an entrenched view I am a member of the federal government, but I also Come to it with a very open and flexible mind, and I'm very excited to hear what What this discussion will reveal and I would encourage everybody to kind of come to it with that same Perception we have existing frameworks that have worked well, but are imperfect And so I think we have a lot to learn from each other So I'm excited to start by introducing Sarah Green who's going to lead off the discussion from PCORI