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小胖威利快樂頌音樂公益快閃 Taipei flash mob 2016 "Ode to Joy" for Prader Willi syndrome

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Published on Feb 4, 2016

「Prader-Willi Syndrome, PWS(普瑞德威利氏症候群)」俗稱-小胖威利症,是一種罕見疾病。
這些病友常因為好吃及強迫傾向,導致情緒及行為異常,被一般長照機構拒收,長期拖累家庭。
小胖威利協會希望能成立『小胖之家』,使患者得以在有系統的照護下,自立生活。我們需要您的愛心支持,因爲「小胖威利想要有個家」。

Patients with Prader-Willi syndrome(PWS), a rare genetic disorder, always presented as learning difficulties, obsessive eating resulting in obesity, obsessive compulsive behavior and emotional problems. As such, they are more likely to be rejected by special institutes and neglected by society. The PWS Association Taiwan would appreciate your help to establish group homes for patients with PWS, a home where they will receive multidisciplinary care, acceptance, and eventual integration into society. Your contribution will make a difference in every family with such child, and to allow them to live life to their full God given potential. Thank you.

官網:https://pwsa.eoffering.org.tw/
粉絲頁:https://www.facebook.com/pwsaTW
電話:02-27780996
地址:台北市仁愛路三段7-3號3F

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