 They have osteogenesis imperfecta. It is brutal bone disorder. It is a rare genetic bone disorder that's characterized by fragile bones that break easily and they have top three. Top three is the most severe form that you can survive the neonatal period with. There are 15 types in literature and all ranging from mild moderate to severe. Noah and Mylon were more severe and in top three it is progressively deforming so it is something that you know they will always have they will always have to be treated for and they get care from the OI clinic at Vanderbilt Children's Hospital in Nashville and they just started a clinical trial a year ago for a new medicine. When I was first pregnant with Noah I had no idea what to expect. I have friends that have kids with special needs that I had never experienced at first hand. It's very different when you experience it first hand. It's also different because they told me that they didn't know if he would survive. When I had him they told me that I would probably not be able to bring him home however I refused to listen to that and I just got him the basic care that he could get and then at eight months old I finally found the OI clinic in Nashville and that's when everything changed that's when he started doing really good. It was much different the second time it was very surprising very heartbreaking whenever I found out that I'm the one who carries the genome which caused him to have it but it was so much better because I felt so much more prepared I felt like I could care for her better than when I could care for him. With him I was just scared to death of always hurting him and with her I was more comfortable and I could be more at ease and it seems like I was able to comfort her and be there for her more so than what I could with him because I was always crying I was tore all the pieces and with my limb it's like okay this is what we have to do this is what we're doing. I hope that they accept them for children for just kids that want to have fun and want to you know be like other kids yeah they have a disorder but you know they're still special they're still room for them in the world there's still things that they can do in the world you know my limb she broke my heart the other day whenever she told me that she didn't think she was beautiful because she can't walk that that's what makes her beautiful is being able to walk and you know that's what I strive for every day is making them feel like even though they can't do things exactly like other children or other people can do they can still do it in their own way. I came in and I adopted them so they're now my children they have put life into a different perspective for me things that were important to me or not now you know I live just seeing them happy and play and to me they're they're normal you had your scary days and there's sometimes that they absolutely just wrack my nerves but they make every day just a little bit better. I always tell parents that there are bad days but there are far more good days than outweigh those bad days it's okay to have a bad day it's okay to be sad it's okay to be upset that your children have this disorder or your children have special needs but don't stay in that place there's still so much life to live and you know what I always tell the kids is you don't have to stand up to stand out.