 Shall I just use the... Can I use this one? Yeah, great! Kia ora tatou, ko Ahiria Te Rangi a hau, ko Ngāti Purao me ngā tuwharetoa o kui iwi, ko Takwira rao, ko Tawai Te Rangi o kui Papa rao, ko Nanny, ko James Ritchie, toku whai a ipo, tēnā ra koutou katoa. Hai! I'm Ahiria and I'm Māori. And this is my talk about why, why matters. This one? Yeah. Aroha mai. This is my Nanny, Tawai Te Rangi. She is the apple of our eye, the matriacle of our whānau, and this is her in her puha patch in Ascot Park, Porirua. As you can see, she is joyous, is all howlin' there, but if you look further, there's a house in the background. That's our house. That's not our backyard that she's standing in. My grandparents came from Tu Rangi as well as Gisborne, and they travelled down to Porirua so that they could start to build housing New Zealand houses in their area. So they've been in Ascot Park since about the 1970s. And so they knew everybody on the street. And when our neighbours started having puha grow, my Nanny just took over, really, and then started gathering it to feed all the tamariki that would turn up at our house. Aroha mai. I'm fangai to them. When I was 11 years old, I was given to them to raise for secondary school. And I'm also the eldest grandchild. So for Māori, this is completely normal. And it's one of the joys of my life that I have been privileged to have this happen to me. In 2017, my Nanny died. She died from pneumonia. She had had a cold for two weeks. And as we usually do, we ran around after her sordidu heating toku to the doctor. We lived in the same house in Ascot Park for almost 45 years. I'm 41. But on the Monday when my auntie called me, she said, Hedia, come quick. We're in the ambulance. We've got Nann going to Wellington Hospital. I got there in about 15 minutes. And by then, they had already done scans on her chest. The pneumonia had taken over the whole of her left side, half of her right hand side, and her kidneys had stopped functioning. At that time, the doctors and the nurses started to prepare our whānau for an end-of-life event. Two weeks. That's all it took. Forever, my love and care to Wellington Hospital for taking care of my gigantic whānau with kids running up and down the corridor and screaming while their parents are crying. Thank you for your aroha. After her tangihana, I got really angry. I got angry because I had already created or started to create wharehau ora. We already had a sensor. But from my point of view, it was too easy. We had a cat bite one. And the kids, I couldn't put it in there. And it felt like an excuse. And so, as we were packing down her house, because our house was a housing New Zealand home, I just slept in her room with a thermometer. And I measured her room during sleep. So from about 10pm to about 6am, I took measurements with my thermometer and it told me that her room was measuring at between 9 and 13 degrees. World Health Organization recommendations for kaumatua is 21 degrees. And as you can in this day and age of the internet, you can look up the temperature of the external temperature of a suburb via Google. So I did it for those two weeks. And I figured out that external temperatures were ranging from between 8 and 13 degrees. I compared that with the temperatures that I had internally, found the external temperatures as well, and figured out that the house was only really adding about 3 degrees in the middle of winter. And so, I count my nanny as one of the 1600 each year that die from respiratory illness. And sadly, in the last two months, I've lost another nanny and an uncle to pneumonia as well. Pneumonia seems to be the last disease that completely watch you out. And a lot of people tell me it is their time and I say, Carl, we are a developed nation. We take care of our people and yet in this one thing, and a few other things. We don't. Dr Phillipa Holden Chapman, she's been researching the effects of housing quality on respiratory illness for at least 15 years. The research was commissioned by our government and there's actually a project that she ran in South Auckland or Northland where they just insulated houses. The whanau didn't have to pay. They just insulated them and then they measured and across the board, chest infections lowered, asthma attacks lowered, pneumonia lowered. And yet, that project was cut by our previous government and it was never started again. We all know this. All of us data nerds, data wranglers. If you don't know a thing, measure it and figure it out. And so myself, Amber Craig and Brenda Wallace, created Wharehawora. Wharehawora is a charity. We are for the people. But it is essentially created by a bunch of nerdy ladies. And so when we were creating this thing, we were very blindsided by the technology. It's very easy to do so and forget about the people. But we soon learned really quickly that you're not about the technology at all. And so our tagline is and Aotearoa, where your home does not make you sick. This is our first sensor. Made from parts from AliExpress, it cost us $30. It also cost me a couple of my fingers because I'm really bad at soldering. This is the one that we call the fire hazard and Brenda dislikes it when I call it so. It is beautiful. It is beautiful. But this is what we did. Bung it together on the kitchen table and we had to prove the thing first. So Brenda has a lot of experience in hardware. Ex-wetter, about to be I think pixel. And so the build out of the dashboard was simple because all we had to do was take the data and push it somewhere so that it's understandable because that's the thing about data. Large rams of numbers don't mean anything actually. But this was our first crack and we honestly thought that we would just do DIY kits for co-clubs so that we could go into schools and teach kids how to make sensors and then they can be the administrator, they can be the boss, they can teach their families and they can keep it up and running. And so we went to the car hull fund which is MB and TPK and we said hey can you give us $80,000 so we can package this up so we don't burn little children. And they went no. We are going to ask you to double it out because we think that you should go into manufacturing because we think that everybody should have one of these. And so we did. My job was to take that initial sensor, our initial designs which were all open source and that were all created from people and audiences while giving talks. They would literally design our 3D cases miniaturise our boards, update our code while we were talking because that's the power of open source. We have since moved away from that but I'll tell you why soon. And so these ones we built in Auckland, half manufactured, half by hand and we built, I think it was 40 kits and they cost $580 and for a prototype that's not too bad to be honest. But if you're trying to cover $1.5 million houses, nope. Speed, scale. How are we going to get these out? And so we did a pledge me and we sold 206 of these kits. Would you believe that only 60 of those were for actual families? The rest of them were donations to families that are most vulnerable. And so we took a lot of that money and I went to Shenzhen because we realised that in order to go fast you need to stop doing the things that you're not good at. And so I went to Shenzhen literally sat in a conference on WeChat and started talking to manufacturers right then and there and just saying, I can be there in an hour and they're like, yep, sweet. And so I was and I did and the thing, the one thing that I asked of them that I thought was actually crazy was would you let us put our firmware into your hardware? If this was America this would never happen. But in China they were like sweet as, but not really, but yes. And so we came up with this. These are Xiaomi sensors. Xiaomi Akara sensors with a gateway that holds our firmware. And it's simply because Xiaomi is the largest manufacturer in China. They can do 10,000 kits a month if they want to and that's only one factory. They have a lot of factories. And let's be honest. I'm not trying to build a safety system that will alert you at the most smallest change. All I'm trying to tell you is if your room is making you sick. And so these sensors, you can buy them right now on Aliexpress for about $15 but their app is in Chinese. And so we did this and this kit costs $186 plus GST. And we can get them out at 10,000 kits per month. And we just did our first large pilot to a health facility, well health organisation called Turanga Health in Gisbund. We're going to roll out 50 kits and it's because Turanga Health do insulation as well as respiratory illness. And so what they want to know is how the home is affecting the family and what changes can be made in order to make sure that family stays healthy. And once they get to that point remove the kit and put it into another home. This is the way it works. You take each sensor turn it on, pair it to the gateway, give it a name, Aroha's room, the nursery, Katie's room, Mum's room and then it takes a measurement every 10 minutes pushes that data to the gateway pushes it to the cloud and it's displayable on any device because we do PWA's progressive web apps not apps because if we are targeting vulnerable whānau they sometimes don't have the data to be able to download that app therefore make it easily accessible to PWA. This is some of the data we collected during our proof of concept last year. We did a roll out to Strathmore as well as Porirua. I think about 20 kits in total and that was just to test whether or not this actually worked. So at the top is a Strathmore home you can see the data coming through is not that great and at the bottom is well it's my house and you can tell by the nudie names that I've given the rooms. I was in the hangar one night putting kits together. I had the dryer going and I had the windows open. That's my garage. This is the same night. There is a location difference I'm in Porirua there in Strathmore but I'm literally got the dryer going with a window open in a garage. This is what you would see if you had your dashboard up and running on a laptop. Say you put baby to bed in the nursery at 8.30. Everything's on kidori, 21 degrees sweaters. At about 8.30 or 10.30 everyone goes to bed turns off the heating. It drops below 21 degrees and so you get a notification on your phone. Sorry I couldn't actually take a screenshot of the notifications it's quite hard. But effectively we say the nursery is below 21 degrees please add heat or move baby to the next warmest room and you'll be able to see the next warmest room. We also let people understand what those temperatures mean to their health because really jumble of numbers doesn't mean anything. Turn it into something. The thing about temperature and humidity is that below 16 degrees above 60% humidity equals mould. It also probably means that you have dust mite population increase occurring. And so what that means is that in that room you might have a sudden bout of coughing or sneezing and you're not sick. It might mean that you have a bleeding nose for no apparent reason. You'll start to get itchy. These are all symptoms of allergies, asthma, and so all we do is tell people what might be happening and in later versions we'll be able to give out full reports on how the temperature and humidity in those rooms are affecting your respiratory health as well as your mental health. Did you know that anxiety and depression are issues that come along when you are in a cold damp room for long periods of time. South facing rooms are usually given to teenage boys because even though they might be the coldest it's privacy and they will take the cold with the privacy. Whoops, I'm going backwards, sorry. It also means that if we are taking data from Afarno and we can give them reports on how their home is affecting them, it also means that at an aggregate level we can also do some crazy things. When I figured out that we could do this I literally cried and had to go down to the beach and it's just because well, our technology is simple. What we're doing is simple and it really pisses me off that I have to do it because effectively if we know that housing New Zealand houses say because they're all built to a type and they're all in the same suburb location it means that they all perform the same way so that means if my nanny's house past her neighbour's houses only really add about 3 degrees of heat in the winter that means that all the other houses like that do too. That also means that if you know how many of those homes are in however many suburbs, that you can give a probability of how much, how big a wave of respiratory illness is coming because it takes 7 to 12 days for it to occur. We know the temperature that has occurred. We know the temperature that is coming therefore we can give a probability of the respiratory illness wave that is coming to. It's ridiculous. I'm literally just a nerd. It also means that if Auckland DHB Kapiti Coast at DHB asked us for a list of suburbs prioritised based on probability of respiratory illness we'd be able to give it to them based on whether or not elderly are present, children are present what ethnicity they are what housing type they are whether they are renting. Why is it that us with just the money that we earn from our contracts and from our permanent roles why is it us that is doing this? When we started we honestly thought sensors, COOL, IOT, COOL, data, COOL then we went out to Strathmore and they went, no. And it's because the first question that they asked us when we went there to talk to them to see whether or not they would have our sensors in their homes their first question was are you from the government? Because the people we were talking to are vulnerable families they are already housing New Zealand clients, they are already working income clients they are already on the bottom level as those hierarchy of needs so all they are doing is protecting what little they have when they ask that question and so it took us a while lots of cup of tea and so we realised that even though it only took us about 6 months to switch from the first version right through to the version that comes from then it actually took us a year in order to understand that trust must be our business model and so we came up with the patiki patiki means flounder but it also for us, it means a window into a way an organisation is run in order for the people to know whether or not they should trust you and so we started with kaitiakitanga if our whānau is in the middle and they are who we are for then kaitiakitanga we must take care of them and all of our decisions we must go back and ask is this in the best interest of the whānau or is this in the best interest of us and so that means that the whānau owns all of the data that is collected we are just holding it in trust for them all we do is provide the service that allows them to understand the impacts of their decision making that means the interweaving the people into the community the community services because way back in the day when we were still pre-colonisation we went alone there wasn't just two of us with the kids it was a hapu it was a iwi our whānau, our whānaui it's called nui for a reason it's so that there are many shoulders to hold this work this stress and so the whānau back into community organisations that will support and help people like our example with Turangahawth in Gisborne they will be able to support them with respiratory illness programmes as well as insulation installations because they can't do this alone we cannot put the onus of fixing this problem onto these whānau that are already vulnerable tenoranga teratanga this one we must have tenoranga teratanga meaning to give space and order for a decision to be made but it also means independence this is why wharehawada does not take investment because if we did it is very easy for us to be swayed into moving the whānau out of the middle of our pataki and putting something else in Facebook is the prime example in 2009 Mark Zuckerberg gave an interview to the BBC where he stated the data will be owned by the people in 2019 he's in court and it's because he lacked independence to be able to say no we're doing these things the hard way we're doing this mahi the really hard way but this is the only way that we can assure that we can hold independence for our whānau because otherwise utu would not occur utu payment, money compensation it is true that wharehawada will sell consented aggregated insights or maybe even the data set we haven't come to that yet and when we do we will give 50% of the profit back to the families that are within those data sets simply because without them there would be no data without them there would be no way for us to be able to fix any of this so you must give utu you must give back I've done these talks quite a few times and a lot of them especially in the last one there was a collective gasp because I said something like government agencies should get out of the way give the money and the resources to the people so they can fix the problems that they are facing the people already know I've been asked all the time hey do you speak truth to power the power already knows the thing is when you speak lies to the people the people already know and so when we talk about our pataki when we talk about it being a window for an organisation to understand whether or not their trust's worthy or not the people already do this they do it in a blank level of trust the formal message what the organisation says then what they actually say on the front lines the formal values you'll find them on the website and then what the organisation actually does I could pretty much pick apart government departments left, right and centre right now I don't need to do that right but the fact of the matter is the people already know the way to get around this the way to increase your level of trust is transparency above all else transparency and the fact of the matter that the formal message and the formal values come from ELT your executive level, your ministers what you actually do what you actually say come from the front line so when your ELT and your front line are out of whack your level of trust is buggered as well when they come together and they are balanced then your level of trust increases which means that the feedback loops between the two need to be tighter need to be shorter because and what the front line does changes in middle management I've been doing digital transformations for a really long time and so when I wrote this talk I was like, holy shit it amazed me that we have been doing these things for a really long time and yet no one's told anyone to their face that they suck we get on social media we get on our rant calls we stop calling kanga ora and call it housing New Zealand we call sips because as a people this is what we can do to push but the change that we're starting to see now is that organisations like mine they are indigenous they are wahine and they are simply cutting them out because that is the only way that we know that we can get things done with the values of our whānau and our organisations intact and it's ridiculous like I've said multiple times but you're going to see more and more organisations like mine do this because we are already seeing the fruits of really poisonous labour our homeless our kōmatua and it can't happen anymore and so when you go back to your organisations apply the patiki to them chances are though you already know because you already know who you serve and when things go awry or a message is reinterpreted as something other than who you serve you get a pang in your heart and you don't want to do the thing but you have bills to pay and we all understand that but try just a little to influence influences a group to say hey this is not what you're saying here why aren't we for the people like we say we are because in the end it all comes back to this this is my nanny with her last grandchild before she died and if everyone everyone wonders why I still keep doing the thing this is why for your grandmothers for your grandfathers for your grandchildren because this world is a bit buggered and I refuse to leave it like this that's what you are that's what you are that's what we are all and that kind of thing so how did you get it going yeah so it's a bit of a funny thing so at the beginning we did it part-time and so we just put money in and then we made the decision that we would go contracting because we were all tech people and put money into the bank account in order to pay for the things but then we also I started pitching so I pitched to the company that I was working for and I said look I'm working on this thing we think we can help we can help our people I'd like to go down to part-time and they were like yeah sweet heirs so I guess the way to start is to ask thank you questions? Big throw kids up I'm interested in the children that you got involved with creating the boxes what are they saying about potential solutions to the challenge yeah so when we created the diy kids the kids loved it but our first when we did our first roll out that first one that looked like that that was diy so when we went into Strathmore the program was to teach them how to put their kids together and a lot of that came from questions from them going does it have a microphone in it, does it have a camera in it is it a bomb but if you look at the technical understanding of a lot of people in vulnerable families it's not that deep therefore their questions are valid and so when you pull it apart and you've got three pieces and you can show them where the sensors are and you can show them that if they want to turn it off all they have to do is pull out the battery then the understanding of what technology is because the fear was really high am I going to break it is it going to give me electric shock how do I use a screwdriver lefty loosey righty tidy the thing we had to do of course was get rid of soldering and so all it was really was teaching them what everything was where the batteries go and screwing it together and that there is nothing in there that can hurt them or that they can break Kia ora, my name is Mark thank you for your corridor I think I'll go and give my kids a taira cuddle tonight than what I would have normally am interested in how government gets out of the way and how especially in relation to the flow of money we had the Minister of Finance here yesterday morning and I'm really interested in your experiences or your thoughts of how in terms of the role of government for helping connect the purse strings to the agencies and the instruments and communities doing social good and changing the lives of people so do you have any sort of comments or experiences from your perspective here and this is mostly from the periphery because of course we've never gone funding therefore and so the thing that we have noticed is that when agencies give money it comes with a whole heap of roles and regulations that we have to hit and the solution generally is already predetermined and even who will deliver that solution is already predetermined but you all don't know you literally don't know and so for me when I say agencies need to get out of the way it's that they say or they in concert with the community figure out what the vision is because the who is the community they say maybe we have a total budget of $300,000 we'll give that to you in six months less we need you to hit agencies this vision at this end and not put gateways in between that way they can also supply people that know what they're doing understanding around user experience and just give them the resources in order to do the thing rather than already predetermine what that thing will look like and who it will serve someone else will help we're a community we go over all of this but I'm like hi thank you for your talk this is the second time I've seen it and it's no no less emotionally charged and significant than it was the first time so thank you I was wondering you say as part of your patiki that you seek the permission of whanau before you hand over any data and I was just wondering whether you could elaborate on what those conversations look like how you choose, how you agree what you even take to them first everything that we do because we need to be scalable and fast is done technically and so this is the design for the moment we haven't implemented yet because we don't have the money but we have an ethics committee and so when an organisation comes to us and says we want a set of data we start to figure out whether or not they meet our patiki if their values are aligned and we also have something called hefeke which also determines the permissions that the family should that the organisation should have depending on how much that data will affect the whanau now the example I'm going to give because I'm always giving housing New Zealand shit so housing New Zealand running a smart homes project where they put sensors into homes and they do temperature, humidity and CO2 the thing about housing New Zealand of course is that predominantly vulnerable families therefore when a whana goes in there and there's a mother with two children she's on the benefit and for a reason a cousin comes to live with them because it's either that or the car and so for four months someone else lives in that house with them the sensors because they have CO2 in them will tell you how many people are in the house at any point in time in any room right and so if we look at the data sharing policies across government departments this is mother on a benefit so her benefit is affected her tenancy agreement is affected has more than the number of people that she has stated and so the ramifications are long far and so our feke it shows us what data any organisation is allowed to have and that's why we also don't do CO2 so if the whana is the head of the feke they see all, it's theirs if they want to they can download it and remove the sensors it's theirs if you go out one level then we're talking about health organisations that already have a relationship with the whānau like Tūranga Health so maybe they already know that the whānau has previous respiratory illness that might be at risk of rheumatic fever they have previous chest infections and so what they're wanting to do is understand the depth of the change that needs to happen in the house in order to change those health outcomes and then you have the outer of the feke that is pretty much open data and that's the data that is aggregated to such a degree that we have a minimum of 50 homes per data set point as well as there are some others that I can't remember but effectively not real time so that data cannot affect a family's life and so we'll be posting the feke soon and from a technical implementation point of view effectively we're building a domain name server for data so someone will do a request we will tell them if the data is available we'll do the values and ethics checks and then we'll be able to tell them whether or not they can have said data or not because we will simply send a notification to the whānau saying how many people are in your house and the impacts are on a benefit if you're on one on your tenancy agreement and they can say yes or no but yeah that's essentially I think you've almost answered my question twice but fantastic talk does this go out to private landlords and can that kind of work that framework as well yeah so we haven't come up with where a private landlord would sit but we know that we'll be able to say things like a lot of the time you'll see statements like the family just needs to open the windows but that question is out of context right it's does the house have insulation what is the external temperature what is the external humidity in comparison to internal do you know what I mean so to answer the question of have you opened the windows with a no but there might be a bloody good reason around it and so all we need to do is create essentially a dashboard where we take the whānau's point of view as sacred and then we give enough information to landlords in order to be able to make decisions around the house because the use case that we have to be careful of is that if we start to say ascot park need insulation or the landlords go okay everyone move out we'll do the insulation we'll do the ventilation we'll ensure that you have heating throughout all your rooms and then they'll go cool now it's $800 instead of $700 so yeah we have to be really careful last question we're eating into morning tea which shows how good this talk is Jane so yes last question Jane thank you so much for your talk it was incredible very moving very thoughtful for working how can I follow what you do and subscribe to your newsletters because I'm really enjoying what you do thank you I really need to update the website but literally a 1.5 woman band with a really good tech team so yeah I'll update that as soon as possible and there is a newsletter you can subscribe to alright I'll wind up now I'm just going to keep it really short and ask what is our pateki what's in the best interest of the people that we serve and I also want to let you know that in honour of Hedia's nanny and Hedia's talk today we're making sorry I'm crying on stage again we're going to be making a donation making a donation in honour of Hedia's nanny and I'll be making a personal donation as well if you're interested in that too let me know and I'll sort out the details Hedia Aroha nui thank you so so much I think from the number of questions you can see the impact you've made on this audience