Alice in Cranioland - Craniosynostosis Journey





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Published on Aug 9, 2013

For anyone that stumbled across this video looking for information about endoscopic surgery for craniosynostosis,...please note that I was misinformed in the beginning and ignore the statement about a higher chance of a 2nd surgery being needed...this is simply NOT true! Here is an updated video about our journey with Craniosynostosis https://www.youtube.com/watch?v=B-UWI... Contact CAPPS.org for more info or visit my blog


This is a video of our daughter's journey with Left Coronal Craniosynostosis. She had endoscopic surgery and will be in helmet therapy for 12 months. We are hoping this video helps others that are going through this journey, raises awareness and gets more information out there about the options available.

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